Saturday, June 21, 2008

MAXIMUS! Milestones a Many!

No Breathing Tube - Check
Eat Through Tube - ? (I know he is eating, so I am not sure if this is needed)
Open Eyes - Check - yes but now John wants to add eye contact when open
Cries - Check
No Nasal Tube - Check
Eat With Mouth (Boobies Boobies Boobies) - Check
Just added - Moving out of NICU into OWN ROOM - Talk of soon!
Ask for Car Keys - we can wait on that one for 15 years!

MAXIMUS! Milestone #1

From comments on my last entry "John and I woke up to the best surprise this morning. NO NASAL TUBE! He is breathing room air now! This has made our whole day. I can't believe what a strong, tough little fighter we brought into the world. After this experience, I'm thinking we should change his name to MAXIMUS!" - Jamie

Friday, June 20, 2008

Waiting Room

It turns out that what happened with the medication was this - they store the glucose bag right next to the epidural bag. Brilliant. I am withholding a lot of anger and several choice swear words.

He is doing pretty well. The neurologist has taken him off of the anti-seizure medication. It will be a bit until he comes out of that.

Here are some milestones John put on the white board in the family waiting room:
No Breathing Tube
Eat Through Tube
Open Eyes
Cries
No Nasal Tube
Eat With Mouth (Boobies Boobies Boobies)
Ask for Car Keys

Post Dr. Update

Max's vitals are normal now and have been throughout the night. They have taken him off of the ventilator and he has a oxygen tube in his nose instead. They also have him on the "Billy-lights" for jaundice (very normal). The bad medicine has passed though and out of his system 75-80%. The biggest concern is brain damage. They will be doing neurological testing on Monday.
I am so angry! This little boy was just breathing fast. He was perfectly healthy. My Mom said it was her understanding that there was a TWO PERSON - double check system in place for medication. Words can not express how I feel. I am blocking out the bad as much as possible and staying within trust that he will still have a normal brain.
Keep love and hope in your thoughts, thanks.

Baby Max at Primary Children's Medical Center

We where very proud of Jamie gaving birth to Max with no drugs - natural - NO epidural even. Yesterday a nurse gave him the wrong medication, the EPIDURAL drug, in his drip. Can you say LAWSUIT?!

He had a seizure in Jamie's arms. Jamie knew there was more to it than that. Their pediatrician immediately came to the hospital (as she should have) on her day off and figured it out. They took him by Life Flight to Primary Children's last night. This "has never happened before" so they don't know how long it will be for it to get out of his system. After the first 8 hours the dose cuts in half then after that it dissipates at a much slower rate.

John and Jamie are in doing very well and being strong considering. They did get a little sleep and ate breakfast. Max's vitals are all looking very good this morning. The Dr. is coming for rounds at 10 am. We should know more what the plan is for him today.

We left the hospital about 2 am. On the way home on Foothill there was a porcupine waddling across the street.

If he wasn't such a big strong baby to begin with, I don't want to imagine what would be going on now. We are all in disbelief and shock at how this could happen. Please send good healthy thoughts our way!

Thursday, June 19, 2008

Max Breathing Update

It looks like little Max is having very similar breathing issues like Alex did. And just as it was a fluke for Alex, it is the same with Max. With both boys they think they breathed in/aspirated some you know, stuff during birth. He is breathing so fast that he can't eat. So he is on O2 and an IV in his head and a feeding tube in his nose. Jamie said he looks more pathetically sick than he really is. It could be up to a week that he will be in the hospital. They are treating for infection there has been talk of possible pneumonia but who knows. The Dr. said he improved from last night. Meanwhile John is starting to get sick so he went home to rest. Alex is way confused why he can't hang out with his baby brother. Jamie is avoiding her Dr. in the hospital so she can at least hang on to be released tomorrow. I wish there was something I could do to help. We are just hanging back, out of the way, waiting.

Wednesday, June 18, 2008

Once, Twice, Three Times Grandparents!

Welcome little Max James! You are so darling! I am going to just annoy people and tell them how damn wonderful you are and how much you are loved.
Another 18 birth date: Grandma Louise Dillier, Grandma Diane, Mommy Jamie, Cousin Lily. I really appreciate you keeping in the theme and adding to the magic/luck when I play roulette or the lotto! See my FlickR for photos: mrsjwd9 (yes, I can't figure out how to link or add pics, I know I am a dork, I will learn soon!).